Polymyalgia Rheumatica Stories – Interview Series
Polymyalgia and Serrapeptase:
1. How long have you had PMR and how did you come to be diagnosed?
My journey began in April of 2012. I remember the onset vividly. I noticed that I was struggling to get up from the toilet and it was uncomfortable. Several weeks later I developed neck and shoulder pain. A month later, I could not roll over in bed, slept horribly due to pain, and it took several attempts just to get out of bed. I took 20 tablets of ibuprofen through out the day just to get by. It was early May that I finally went to see my MD. Initially, he suspected that I might have a virus in my spine. So off I went with a five-day course with prednisone. The relief was immediate within hours. But it came back. By then, I had no appetite, low-grade fever, and all consuming fatigue. I went back to my MD. He did some lab work and referred me to a neurologist. My sed rate was 39 and my CRP was 0.8. It was neurologist that made the diagnosis.
2. What medications have you been prescribed and how do you feel whilst on them?
My treatment is prednisone. I have only one side effect and that is insomnia. I do have to take sleeping pills and only take them if I have to work the next morning.
3. Do you have a sense of how PMR might develop? (e.g. exhaustion, trauma/loss, diet, genetics, etc.)
When I reflect back on the possible “trigger event”, all I can possible come up with is a recent remodel job, husband’s surgery, and maybe my husband’s shingles vaccination. My age is 57.
4. How does PMR affect your daily life?
I am happy to report that my days are fairly normal. I hope this continues during the weaning process. My shoulders and neck feel stiff at times, but I can usually stretch my way out of it.
5. Are you coping with any other health issues right now? If yes, please give a brief summary.
My only other health issue is that I am “pre” diabetic. This has been a challenge with the prednisone. I believe my diet changes have been most helpful. My blood glucose levels are a bit high, but they decrease with reductions in the prednisone. I am on 12.5 mg at this writing.
6. Have you tried any natural therapies or supplements? If yes, please share your experience of them.
I immediately started on an anti inflammatory diet that excludes wheat and dairy. I also take serrapeptase 40mg daily. Exercising 3 times daily in 10 to 15 minute sessions works well, for me, to relieve stiffness. This summer, I walked and swam. This winter, I am going to try beginner’s yoga and light resistance bands in addition to walking.
7. Have you found support online or in a group?
My husband is supportive. I really do not discuss my PMR with friends. I did at first, but it is hard to understand if you have not been there, I guess. The problem is we do not look sick. I prefer to communicate on the Facebook PMR group, as I feel understood there.
8. Any further comments, questions or advice for others?
PMR has changed my life. My hope is that the changes I am making will reward me during the weaning process and duration. I feel optimistic most of the time, but, admittedly, I do NOT want this PMR!
- Polymyalgia Rheumatica – Massimo’s Story Dear all, I have PMR from about 1 year and now I’m on prednizone 2.5 mg one day and the other 3.75 mg. No problems with diabete; my life is quite the same as before PMR: I work all day long and try to do...
- Polymyalgia Rheumatica – John’s Story I am a 52 year old male who was diagnosed with PMR about a month ago after two months of excruciating pain. I had been doing a little painting around our house and thought the sudden pain in my shoulders was related to the painting....
- Polymyalgia Rheumatica – Jo’s Story Was diagnosed in Sept 2012 (Ed – maybe 2011?). But had battled the same symptoms for almost 3 yrs. Many dr’s later, I was told it was PMR. Read about it, all I could about. Wanted to hear from people who actually suffer from this....
- Polymyalgia Rheumatica – Teena’s Story My internist diagnosed PMR and put me on 20mg of Prednisone. That only lasted about a week and the Symptoms returned, mostly in my shoulders. Saw a Rheumatologist, who put me on 30 mg, with no relief. My shoulders are painful, and especially bad when...